Tuesday, December 25, 2012
Wednesday, December 19, 2012
When Bryleigh was 18 mos, I noticed she wasn’t saying any words and would make sounds instead of words. For instance, Love You was hmm hmm. Cadence was fafa and so on. I mentioned it at her appt and the dr told me not to worry – some kids just develop later. I’m aware of that..Cadence was in speech therapy from 18 mos to 2 1/2 yrs old. This was different.
Dennis’ nephews all have CAS. The oldest is 17 and still has problems being understood. I worry about the girls b/c I don’t want them to have to struggle like he does.
It was hard for us too. At home she would get so mad that we didn’t understand what she was saying that she would start throwing tantrums or cry herself to sleep from frustration. It broke our hearts into a million pieces. Something so simple that she wanted us to know and she couldn’t even share it.
Her face tells us so many things, but her little voice doesn’t. I was praying for the moment when she would tell me she loved me. [Im]Patiently waiting for her to be able to play with other kids w/o the other kids asking what she was saying or looking at her like she was speaking another language. I want so desperately for her to have a friends that understand her.
At Bry’s 2 yr appt, I again voiced my concern. This time she agreed and wrote us up for a speech eval. Our insurance is A-MAZ-ING, however, it doesn’t cover speech therapy. It will cover speech evaluations. But, those sneaky bastards, only approved a speech therapist in Brighton, MI..more than an hour from our house. Considering the price of speech evals, it was worth it to go up there for her eval.
The evaluation was 2 hrs long…after, I met w/the therapists and was told that she was apraxic. Even though I was fully expecting them to tell me this, I was still saddened by the diagnosis. To top it off, our insurance wouldn’t cover therapy and I didn’t want her to not be able to speak properly b/c we couldn’t afford to pay for therapy.
I contacted Help Me Grow, they did another eval and we were set up with family resource funds to help pay for Bry’s therapy. We could do private therapy OR we could take her to one of the universities and use their therapy. It’s MUCH less expensive b/c it’s being done by grad students. Since we only get $1,000/year, it will last longer at the university. This is the route we’ve chosen.
Shortly after her diagnosis, I was told about a support group. We participated in their 2nd annual walk and I started attending the meetings. They had a grant offering IPads for the kiddos. I applied for Bryleigh and guess what – she got it!!!
She’s only had it a week or so – but it’s amazing. One app, in particular, is doing a lot for her. It shows the mouth close up and how it moves. She loves playing w/the ipad. She plays games as well as using the speech apps.
Listening to the improvement in her speech just amazes me! This girl is a trooper!!
As we continue on our Apraxia journey, I’m thankful for my supportive family and friends, for the wonderful support group I belong to…but especially thankful for my little girl – Apraxia may have crippled her voice for now – but her personality speaks volumes!
Thanks to NWO Apraxia Support for Bryleigh’s IPad grant application!
Playing w/her IPad is exhausting
Monday, December 17, 2012
Olivia Engel, 6
Emilie Parker, 6
Charlotte Bacon, 6
Ana Marquez-Greene, 6
Dylan Hockley, 6
Madeleine Hsu, 6
Catherine Hubbard, 6
Jesse Lewis, 6
James Mattioli, 6
Jack Pinto, 6
Noah Pozner, 6
Caroline Previdi, 6
Jessica Rekos, 6
Avielle Richman, 6
Benjamin Wheeler, 6
Allison Wyatt, 6
Daniel Barden, 7
Josephine Gay, 7
Chase Kowalski, 7
Grace McDonnell, 7
Anne Marie Murphy, 25
Victoria Soto, 27
Rachel Davino, 29
Lauren Rousseau, 30
Dawn Lafferty Hochsprung, 47
Anne Marie Murphy, 52
Mary Sherlach, 56
I haven't blogged much this year, this tragedy broke my heart. Tomorrow there will be a day of silence in the blog world which I wanted to recognize.
Prayers to the families of these beautiful people. <3>
Thursday, December 6, 2012
The girls were quite excited this morning when they came out before school and found the treats from St. Nick…
Monday, November 19, 2012
My sister had gone up to the ER previously, when he had went in for seizures, earlier this week. She witnessed one and said it was so scary. Tonite, I went up with him and sat and talked to him. While I was on one side of him, my mom was on the other. The girls were sitting in chairs at the end of the bed watching tv. He & I were talking about getting a drink - he said he was thirsty. I asked him if he wanted pop or juice. He wasn't answering me. I assumed he was listening to my mom talk on the phone. It took only a few seconds to realize he was actually seizing. My mom grabbed a nurse and within a minute, he was done. But he has NO recollection of what had happened or what we were even talking about. It was scary and weird. When I say he was seizing, I don't mean he was thrashing around..he was looking around, dazed, his jaw was clearly locked and his eyes were blank.
By the time Jenny had gotten back up there, the girls were ready to go. We said our good-byes and headed home with heavy hearts.
I had promised Cadence we'd do a class treat for Thanksgiving, so when we got home, with a bag full of ingredients, I got to work. Even if I
While looking for an 'easy' treat for Thanksgiving, I ran across these adorable Turkey Pops. They weren't exactly quick, but the end result was worth the mess!
Thanks for another great idea Pinterest!
Sunday, August 26, 2012
We decided to go down to visit for the weekend. Luckily, we chose a weekend full of free activites!
I had a giftcard for Applebee’s, so after checking into the hotel, we headed over for lunch.
On the way there, we saw a free Church event, so as soon as we were done eating, we headed over for play time.
I had read about a hot-air balloon festival about 25 mins from the hotel, so that was our next stop.
How awesome is this? Also, a free event – it included bouncy houses and free art stuff.
On the way back to the room, we grabbed some pizza and treats. The girls were pretty worn out from all the activities and crashed shortly after they ate!
It was great to see Dennis, we miss him so much. Can’t wait til he’s able to come home!
Tuesday, August 7, 2012
Our tradition is b/day parties every year..until they are 10..then it will be on their 13th, 16th, 18th and 21st..
This year we had a lot going on..we are getting ready for Dennis to head on the road now that he has his cdl...I never put together a party for her. Next yrs will have to rock. But this year, we went to dinner w/the family at Applebee's and it was nice. No prep stress, no decorating/cooking/cleaning..
I do enjoy putting the parties together - but the break this year, while she isn't old enough to realize it..totally rocked!
My poor Gramma had fallen shortly before her party and looked pretty beat up...her bone around her eye felt funny, so we took her to the ER to have a x-ray done and checked out. Thankfully everything was good, but she sure did look rough for a few weeks..